Chances are, if you’ve found this website, your child – or someone you know’s child – has just had a diagnosis (or tentative diagnosis) of Warburg Micro Syndrome (WMS). I remember coming home after our genetics appointment in 2004 and ‘googling’ until the early hours.
Firstly, WELCOME and secondly PLEASE don’t worry – you’re not alone and no matter what your Medical Specialists have told you each child with WMS is different.
Yes, your life will change forever but in a positive way – these youngsters bring so much joy and can teach us so much, we owe it to them – to learn to take each day as it comes.
Most of our advice and contact is done through our ‘Warburg Micro Syndrome’ Facebook Group Page – speaking to other parents with years of practical experience is invaluable. Please ask to join our Group saying a little about yourself and child and we will be in touch as soon as we can !
Research is still in its infancy – we don’t know what tomorrow will bring – what we can do is help one another through this new life that we all have now…
We look forward to hearing from you !